Assistive lift devices for Duchenne Muscular Dystrophy At Walking Strong, our mission is to provide essential assistance to individuals and families facing the challenges of muscular dystrophy. We believe that everyone deserves the opportunity to live their lives to...
Living with Duchenne
Explore our articles to discover inspiring stories and learn how Walking Strong is making an impact.
Power Soccer League Defies the Odds – A Triumph of Spirit
A Journey of Six Teenage Boys Battling Duchenne, Uniting as a Team, and Triumphing as Champions When we first received the devastating diagnosis of Duchenne for our son, Alex, our dreams of him sharing the love of sports and playing competitively seemed shattered....
Water – A refuge from Duchenne
I am sitting and watching my boy experiencing freedom. Free from his wheelchair, free from constriction, and tightness and free from Duchenne - for a moment. We are in Miami, basking in the warm and humid weather, and my son is floating in the water light as air and...
Duchenne Parent Guide for Sanity
It is not often that we find tools and resources for parents for coping and living with Duchenne. Each one of us is consumed in finding the best therapy for our boys, getting them into the right clinical and the best clinical care. NONE of us are focusing on our own...
The Basketball Hoop
There’s a basketball hoop standing in my backyard. In February, Alexander begged us for it, even though his walking began to decrease in December. He loved it and was so proud of himself every time he would make a basket, albeit the hoop was hung very low...
Clinical Trial – Day 1
I guess you can say - "we are lucky.' After 5 days of putting Alexander through extensive testing (a 3 hour MRI, extensive bloodwork, ECG, Pulmonary, 2 days of physical therapy assessment, fecal testing (ek!) and a physical exam), we received official word last...
Two classmates – two trials….heroes amongst us
Today I had a sad day visiting a classmate of Alexander’s at Children’s Hospital. He had a malignant brain tumor removed 6 days ago. His name is Cooper and he is 9. His mom is a friend of mine, who recently found out about Alexander having Duchenne, and graciously...
Day at the Clinic
Today was the Center for Duchenne Muscular Dystrophy clinic day… A completely dreaded day for us all. How exhausting both emotionally and physically. The first thing I must say is the fact that Alex did NOT want to leave the house this morning to go to the “clinic”....
CLINICAL TRIAL – No easy choices
On a Saturday morning at 9:00am I received a call from our Neurologist at UCLA. He called to tell me the news that there is a clinical trial at UCLA that Alexander could qualify for. After a 45 min conversation, I was left hopeful but at the same time anxious and a...