Living with Duchenne

Explore our articles to discover inspiring stories and learn how Walking Strong is making an impact.

Water – A refuge from Duchenne

Water – A refuge from Duchenne

I am sitting and watching my boy experiencing freedom. Free from his wheelchair, free from constriction, and tightness and free from Duchenne - for a moment. We are in Miami, basking in the warm and humid weather, and my son is floating in the water light as air and...

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Duchenne Parent Guide for Sanity

Duchenne Parent Guide for Sanity

It is not often that we find tools and resources for parents for coping and living with Duchenne.   Each one of us is consumed in finding the best therapy for our boys, getting them into the right clinical and the best clinical care. NONE of us are focusing on our own...

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The Basketball Hoop

The Basketball Hoop

There’s a basketball hoop standing in my backyard.   In February, Alexander begged us for it, even though his walking began to decrease in December. He loved it and was so proud of himself every time he would make a basket, albeit the hoop was hung very low...

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Day at the Clinic

Today was the Center for Duchenne Muscular Dystrophy clinic day… A completely dreaded day for us all. How exhausting both emotionally and physically. The first thing I must say is the fact that Alex did NOT want to leave the house this morning to go to the “clinic”....

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