Oct 11, 2024 | Events, Fundraising
A Night of Strength Gala 2024 was a Testament to Community and Compassion The Gala was more than just a fundraising event. It was a powerful gathering of individuals united by a shared commitment to supporting families affected by Duchenne muscular dystrophy....
Aug 2, 2023 | Experiences+, Living with Duchenne
A Journey of Six Teenage Boys Battling Duchenne, Uniting as a Team, and Triumphing as Champions When we first received the devastating diagnosis of Duchenne for our son, Alex, our dreams of him sharing the love of sports and playing competitively seemed shattered....
Jul 12, 2019 | Living with Duchenne
I am sitting and watching my boy experiencing freedom. Free from his wheelchair, free from constriction, and tightness and free from Duchenne – for a moment. We are in Miami, basking in the warm and humid weather, and my son is floating in the water light as air...
