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Together, We Can Cure Duchenne Muscular Dystrophy Together, We Can Cure Duchenne Muscular Dystrophy Together, We Can Cure Duchenne Muscular Dystrophy
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Featured

 A Night of Strength 2019
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By admin
In Featured
Posted November 2, 2019

A Night of Strength 2019

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 Water – A refuge from Duchenne
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By walking-val
In Featured
Posted July 12, 2019

Water – A refuge from Duchenne

I am sitting and watching my boy experiencing freedom. Free from his wheelchair, free from constriction, and tightness and free from Duchenne – for a moment. We are in Miami, basking in the [...]

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 Duchenne Parent Guide for Sanity
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By walking-val
In Featured
Posted April 27, 2019

Duchenne Parent Guide for Sanity

It is not often that we find tools and resources for parents for coping and living with Duchenne.   Each one of us is consumed in finding the best therapy for our boys, getting them into the [...]

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 FDA Finally Approves First Ever Treatment Drug – Finally!
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By walking-val
In Featured
Posted September 27, 2016

FDA Finally Approves First Ever Treatment Drug – Finally!

100 days after the FDA’s legally mandated decision date,the FDA announced accelerated approval for  Eteplirsen by Sarepta Therapeutics.  Eteplirsen is the first therapy drug approved for [...]

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