Blog
Water – A refuge from Duchenne
I am sitting and watching my boy experiencing freedom. Free from his wheelchair, free from constriction, and tightness and free from Duchenne - for a moment. We are in Miami, basking in the warm and humid weather, and...
Duchenne Parent Guide for Sanity
It is not often that we find tools and resources for parents for coping and living with Duchenne. Each one of us is consumed in finding the best therapy for our boys, getting them into the right clinical and the best...
The Basketball Hoop
There’s a basketball hoop standing in my backyard. In February, Alexander begged us for it, even though his walking began to decrease in December. He loved it and was so proud of himself every time he would...
Oscar DeLaHoya posts about Walking Strong
Kobe Bryant Tweets about Alexander
