About Walking Strong

Our Mission

Our mission is to empower individuals affected by Duchenne Muscular Dystrophy and their families. We are committed to providing comprehensive support, funding cutting-edge scientific research, and building a strong and compassionate community.

Alex in his wheelchair posing with a trophy

Our Story: Meet Alexander

Alexander was diagnosed with Duchenne Muscular Dystrophy just a week before his preschool graduation in 2011, when he was five years old. At the time, we had never heard of “Duchenne,” and the news of his diagnosis left us devastated.

After a period of grief and mourning, with the support of our friends and family, we were able to reframe our situation and found strength, courage, and faith in God. We were encouraged to start a foundation to get closer to a cure and raise awareness about the disease.

We turned our adversity into service, and through generous donations, we established Walking Strong—a life-changing organization designed to help all those affected by Duchenne. Now 19 years old, Alexander is a California Lutheran University student majoring in Sports Communication. He has a magnetic smile that warms the hearts of everyone he meets. His deep love for sports shines through as an athlete on the two-time winning U.S. Power Soccer Team, the Los Angeles Soccer Club, which competes nationally. Additionally, he served as the Team Manager for the Crespi Football and Basketball Team, working alongside former Laker Derek Fisher.

Alexander hopes to pursue a career in sports broadcasting after graduation. Alexander has taught us that each day of life is precious and encourages us to embrace the journey and be grateful for everything we have. His example has led us to a place of service, the ultimate fulfillment.

We founded Walking Strong to demonstrate our determination and commitment to Alexander and all boys with Duchenne Muscular Dystrophy, helping them thrive and walking alongside them and their families, providing them hope and strength.

“When we are no longer able to change a situation, we are challenged to change ourselves.”
― Viktor E. Frankl, Man’s Search for Meaning

Walking Strong Logo

Our Team

Walking Strong’s Board of Directors represents leaders at the forefront of their fields in film, media, legal, financial, and advertising.

Co-Founders

Valerie and Jorge Llauro

Contact Board

Contact info@walkingstrong.org

Board of Directors

Jorge Llauro: President
Valerie Pappas Llauro: Executive Director
Bill Varnava: Treasurer

Laurie Anast
Peter Ansaldi
Robb Friedman
Dean Masserman
William Stavropoulos