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How Kobe Bryant’s Kindness Impacted Young Fan With Duchenne Muscular Dystrophy

Kobe Bryant's Kindness to Alex with Duchenne Muscular Dystrophy

How Kobe Bryant’s Kindness Impacted Young Fan With Duchenne Muscular Dystrophy Kobe Bryant’s Kindness – Valerie Pappas Llauro, mother of Alex, a young boy with Duchenne Muscular Dystrophy, combats the disease directly in a letter inspired by Kobe Bryant’s “Dear Basketball.” With the help of Kobe Bryant and others, these “warriors” are helping to give […]

Duchenne Parent Guide for Sanity

It is not often that we find tools and resources for parents for coping and living with Duchenne.   Each one of us is consumed in finding the best therapy for our boys, getting them into the right clinical and the best clinical care. NONE of us are focusing on our own needs.   What?  Do we […]