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Join Us on Social Media for Inspiring Stories! Don’t miss a post, follow us today! As we continue our unwavering commitment to empower individuals and families affected by Duchenne Muscular Dystrophy (DMD), we want to invite you to join us on our social media channels. Our mission is clear: to provide unwavering support, drive groundbreaking […]
Power Soccer League Defies the Odds – A Triumph of Spirit
A Journey of Six Teenage Boys Battling Duchenne, Uniting as a Team, and Triumphing as Champions When we first received the devastating diagnosis of Duchenne for our son, Alex, our dreams of him sharing the love of sports and playing competitively seemed shattered. However, seven years later in 2018, everything changed when we discovered U.S. […]
How Kobe Bryant’s Kindness Impacted Young Fan With Duchenne Muscular Dystrophy
How Kobe Bryant’s Kindness Impacted Young Fan With Duchenne Muscular Dystrophy Kobe Bryant’s Kindness – Valerie Pappas Llauro, mother of Alex, a young boy with Duchenne Muscular Dystrophy, combats the disease directly in a letter inspired by Kobe Bryant’s “Dear Basketball.” With the help of Kobe Bryant and others, these “warriors” are helping to give […]
Water – A refuge from Duchenne
I am sitting and watching my boy experiencing freedom. Free from his wheelchair, free from constriction, and tightness and free from Duchenne – for a moment. We are in Miami, basking in the warm and humid weather, and my son is floating in the water light as air and is soaring. The sun is beating […]