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Bold Journey Shines a Spotlight on Valerie’s Journey to ‘Walking Strong’ for Duchenne

Valerie Pappas Llauro was featured in an article on Bold Journey. Here she is pictured with her son, daughter and husband.

Valerie Pappas Llauro was recently featured in an article on Bold Journey, where her journey unfolds. In 2011, her son’s diagnosis with Duchenne Muscular Dystrophy set her on an unexpected path. This rare genetic disease prompted her to establish ‘Walking Strong,’ a foundation dedicated to raising awareness, funding research for Duchenne, aiding families with medical […]

Helping Hunter and Carlos – and Their Moms!

Young male with Duchenne Muscular Dystrophy using a assistive lift device that was donated by Walking Strong

Assistive lift devices for Duchenne Muscular Dystrophy At Walking Strong, our mission is to provide essential assistance to individuals and families facing the challenges of muscular dystrophy. We believe that everyone deserves the opportunity to live their lives to the fullest, regardless of the obstacles they may encounter. Today, we want to share the heartwarming […]

How Kobe Bryant’s Kindness Impacted Young Fan With Duchenne Muscular Dystrophy

Kobe Bryant's Kindness to Alex with Duchenne Muscular Dystrophy

How Kobe Bryant’s Kindness Impacted Young Fan With Duchenne Muscular Dystrophy Kobe Bryant’s Kindness – Valerie Pappas Llauro, mother of Alex, a young boy with Duchenne Muscular Dystrophy, combats the disease directly in a letter inspired by Kobe Bryant’s “Dear Basketball.” With the help of Kobe Bryant and others, these “warriors” are helping to give […]

Duchenne Parent Guide for Sanity

It is not often that we find tools and resources for parents for coping and living with Duchenne.   Each one of us is consumed in finding the best therapy for our boys, getting them into the right clinical and the best clinical care. NONE of us are focusing on our own needs.   What?  Do we […]