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Walking Strong Gala 2019 raises over $350,000 – a total of $1,000,000 in 5 years!

The 2019 Annual “Night Of Strength” Gala was the most successful to date.  With over 350 attendees, silent and live auctions, incredible food and a powerhouse performance by NBC’s “The Voice” finalist Keisha Renee.  The silent and live auction featured priceless and sought after items, such as Guest passes for Coachella,  a weekend in New […]

The Basketball Hoop

There’s a basketball hoop standing in my backyard.   In February, Alexander begged us for it, even though his walking began to decrease in December. He loved it and was so proud of himself every time he would make a basket, albeit the hoop was hung very low to accommodate him.   He was flip flopping between […]

FDA – NOT FOR DUCHENNE

April 26, 2016   As I sit bleary-eyed  on the airplane flying home from what should have been a “successful” trip to DC, I am still stunned and disheartened from yesterday after a grueling TWELVE HOUR meeting with the FDA and it’s Advisory Committee, that went from an historic event into a catastrophe.   I want […]