100 days after the FDA’s legally mandated decision date,the FDA announced accelerated approval for Eteplirsen by Sarepta Therapeutics. Eteplirsen is the first therapy drug approved for [...]
April 26, 2016 As I sit bleary-eyed on the airplane flying home from what should have been a “successful” trip to DC, I am still stunned and disheartened from yesterday after a grueling [...]
I guess you can say – “we are lucky.’ After 5 days of putting Alexander through extensive testing (a 3 hour MRI, extensive bloodwork, ECG, Pulmonary, 2 days of physical [...]
On Saturday, May 23 – Jorge and I officially launched WALKING STRONG. What started out as an idea for hosting around 50 people in our home, to announce Walking Strong, turned into a 240 [...]
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